Our Mission:
The LAM Foundation urgently seeks safe and effective treatments, and ultimately a cure, for lymphangioleiomyomatosis (LAM) through advocacy and the funding of promising research. We are dedicated to serving the scientific, medical and patient communities by offering information, resources and a worldwide network of hope and support. |
Current News
Air Travel Information
November 1, 2011
Click here to read an article on LAM and air travel.
LAM Presentation at NIH
September 21, 2011
Joel Moss, MD, PhD and Frank McCormack, MD recently gave a presentation at NIH. The presentation called Lymphangioleiomyomatosis (LAM) Molecular Insights Lead to Targeted Therapies and Multicenter International LAM Efficacy of Sirolimus (MILES) Trial was recorded. Click here to watch the video.
Silencing LAM
August 2011
Frank McCormack, MD, LAM Foundation Scientific Director, gave a speech on Silencing LAM at the University of Utah. Click here to watch the video.
Regional LAM Meetings
July 2011
Check out pictures from our regional meetings and luncheons. These pictures are located in the Photo Gallery.
Journeys Newsletter
July 15, 2011
Our summer Journeys newsletter has been added to the website. Click here to view this document.
Worldwide LAM Awareness Day
June 1, 2011
Thank you to everyone who raised awareness of LAM in celebration of our 1st annual Worldwide LAM Awareness Day. The pictures above show just how creative the LAM community can be!
Public Advisory Roundtable (PAR) Excellence Award
May 18, 2011
Frank McCormack, MD, LAM Foundation Scientific Director, was presented the PAR Excellence Award during the American Thoracic Society (ATS) Conference on May 18, 2011 in Denver, CO. PAR is a core component of the ATS that represents persons affected by respiratory disease and provides the patient perspective to the ATS. The PAR Excellence Award honors people who have improved the lives of patients by; enabling research and advancing the understanding of disease through legislation, advocacy or philanthropy; performing basic or clinical scientific works that have produced tangible and significant benefits for affected individuals; and providing vision, hope, support or relief to those who live with life-threatening pulmonary illness.
Past recipients of the PAR Excellence Award include: Claude Lenfant, MD, James P. Kiley, BS, MS, PhD, Talmadge E. King, Jr., MD, Steven Groft, Pharm D, Dean Schraufnagel, MD, Sheldon Siegel,MD, Gordon D. Rubenfeld, MD, Margaret S. Herridge, MSc, MD, MPH, Bernadette Gochuico, MD, and Roy Brower, MD.
NORD Award
May 17, 2011
The MILES Research Team led by Frank McCormack, MD, and The LAM Foundation won the Partners in Progress Award. The research team and Foundation were honored for demonstrating how effective partnership between scientific researchers and the patient community can drive progress in better understanding of rare diseases and possible treatments.
Dr. Frank McCormack Presents MILES Trial Results
April 8, 2011
Click here to listen to Dr. McCormack's presentation. It is a big file so be patient.
New England Journal of Medicine (NEJM) Publishes MILES Trial Results
March 16, 2011
Click here for the NEJM Full Article
The LAM Foundation and Trial Participants Featured in NEJM Editorial
Click here for the NEJM Editorial
Click here for MILES FAQs.
VEGF-D Blood-based Diagnostic Test for LAM
VEGF-D testing is done in a clinical lab at Cincinnati Children’s Hospital Medical Center. To obtain a VEGF-D test please click here and choose “VEGF-D Quantification Sample Submission Form" (under Request Forms on the left-hand side).
|
|
