LAM Liaison Patient Network
The LAM Foundation LAM Liaison Patient NetworkA hallmark of the mission of The LAM Foundation is support for women with LAM and the ability to offer them a personal touch. Patients and family members can call and talk directly with a friendly staff member who provides much needed reassurance and information. Eventually though, most women feel the need to communicate directly with others who also have LAM. They can do this either online through the community forum on The LAM Foundation website, or they can be referred to others who have indicated their willingness to be contacted.
As more women are diagnosed and the LAM community grows, we want to make sure that the personal touch is maintained. At the January 2007 Board meeting a Strategic Plan for The LAM Foundation was developed. One of the strategic goals is to "strengthen patient services - be the first place patients turn to for information, support and hope." A major component of this goal is the development of a regional LAM Liaison Patient Network
The United States and its territories have been divided into regions, taking into consideration patient numbers, geography, and proximity to a future LAM Clinic. Each region will be coordinated by a regional LAM Liaison appointed and trained by The LAM Foundation. The Liaison will serve as a link between the Foundation and the women with LAM within their region and they will also facilitate communication among those patient and families. Those who give their permission will receive a personal phone call from their Liaison after contacting the Foundation.
The Liaison will answer questions whenever possible, provide a point of contact with the patient in their region, and help coordinate regional meetings as the Foundation creates a more national presence. Eventually, each region will hold its own annual one-day meeting, not to replace the annual LAMposium in Cincinnati - but to supplement it because not all patients are able to travel long distances. Using their personal knowledge of the region and the public relations expertise of the Foundation, they will assist in raising awareness of LAM and The LAM Foundation, serve as an advocate for the Foundation and participate in media and public relations activities.
This is an exciting time in the growth and development of The LAM Foundation. Increased awareness from the public service announcement campaign and other public relations efforts of the Foundation will result in more women being accurately diagnosed with LAM. The Regional Liaison Program will ensure that all women with LAM and their families will receive the personal attention they both need and deserve.
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LAM Liaisons and Regions
Madeline Nolan - New England Region
Connecticut, Maine, Massachusetts, New Hampshire, Rhode Island, Vermont
Loretta McKenna - Eastern Atlantic Region
Eastern Pennsylvania, New Jersey, New York
Pat Rubadeau - Northern Midwest Region
Northern Illinois, Northern Indiana, Northern Ohio, Michigan, Western Pennsylvania
Mary Stojic - Mid-Atlantic Region
Delaware, Maryland, Virginia, Washington D.C.
Jean Togikawa - Southern Midwest Region
Southern Ohio, Southern Illinois, Southern Indiana, Kentucky, West Virginia
Mary E. Vinson - South Eastern Region
Alabama, Georgia, Mississippi, North Carolina, Tennessee, South Carolina
Jackie Carroll - Florida Region
Florida, Puerto Rico
Mary Harbaugh - Northern Region
Iowa, Minnesota, North Dakota, South Dakota, Wisconsin
Cindy Beasley - Central Plains Region
Kansas, Missouri, Nebraska
Beverly Jackson - Central South Region
Arkansas, Louisiana, Oklahoma, Texas
Shar Van Winkle - Northwest Region
Alaska, Idaho, Montana, Oregon, Washington
Ann Struthers - Western Region
Colorado, New Mexico, Utah, Wyoming
Margie Wong - Pacific West Region
Nevada, Northern California
Linda Schwarz - Pacific Southwest Region
Arizona, Hawaii, Southern California
Marsha Cohen - Canada
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