LAM Listserv

Sign Up for the LAM Patient/Family Listserv

The LAM Foundation provides the opportunity for LAM patients and their families to communicate with their counterparts worldwide through an electronic mailing list known as a listserv.. The listserv is an electronic link between LAM patients who choose to subscribe to the LAM listserv network. This service is an automatic group mailing through email, and when a subscriber types in one address, every subscriber receives the message.

The listserv is recommended for patients who would like to share daily thoughts, frustrations, and/or questions about LAM with others. Because email is so convenient, the listserv may be used anytime of the day or night, ignored when you are busy, retrieved for a late-night lonely spell, read and re-read as one desires. However, if at any point you find the listserv to be overwhelming, you may easily unsubscribe.

Most women with LAM find communicating on the listserv tremendously therapeutic, and often uplifting. When one LAM patient feels discouraged, another can lift her spirits. When one has a question, she can often get a dozen (usually different!) answers. The responses are honest, heartfelt and empathetic

LAM patients who have enrolled in this free service have experienced an amazing expansion of their world. They have communicated with patients living everywhere from Alaska to Ohio to California to England, and even Norway. Topics range from our own special anecdotes to sharing jokes and personal feelings. As one LAM patient put it, "The listserv has been a very comforting way to have contact with women with LAM who understand the struggles and fears we all try to overcome at different levels every minute of every day."

Listserv Instructions

Subscribing to The LAM Foundation Listserv is easy. It is a way to communicate with LAM patients and LAM families around the world. Please read the following Listserv Guidelines before joining.

Click here to read the list serv guidelines. All you need to join is an email account.

Follow the simple instructions below to subscribe:

TO SUBSCRIBE TO THE LISTSERV

1. Send an email message to LISTSERV@LISTSERV.UC.EDU

---- The Body of the message should have the following:

SUBSCRIBE LAM-PATIENTS YOUR NAME

It will look like this:

2. A return message will be immediately sent to you.

---- This message will say that you successfully subscribed to the listserv.

It will look like this:

From LISTSERV@listserv.uc.edu Sat Jan 9 15:45:20 1999 Date: Sat, 9 Jan 1999 14:42:14 -0500 From: "L-Soft list server at University of Cincinnati (1.8d)" <LISTSERV@LISTSERV.UC.EDU> To: yourname@your place.com Subject: Command confirmation request (6D514ED6) Your command: SUBSCRIBE LAM-PATIENTS your name has been received. You must now reply to this message (as explained below) to complete your subscription. The purpose of this confirmation procedure is to check that the address LISTSERV is about to add to the list for your subscription is reachable. This is a typical procedure for high-volume lists and all new subscribers are subjected to it - you are not being singled out. Every effort has been made to make this verification as simple and painless as possible. Thanks in advance for your cooperation. To confirm the execution of your command, simply point your browser to the following URL: http://listserv.uc.edu/cgi-bin/wa.e

3. YOU MUST reply to this message to complete the subscription (otherwise you will be deleted from the list within 48 hours). The reply should be an email message responding to what was sent to you. The message of OK should appear in the body of the message. Most email providers have a reply to sender function.

It will look like this:

4. Two more messages will be sent to you. One shows what you sent to the listserv and the other confirms your acceptance to the listserv.

Confirmation showing your info will look like this:

From LISTSERV@listserv.uc.edu Sat Jan 9 15:46:04 1999 Date: Sat, 9 Jan 1999 14:49:00 -0500 From: "L-Soft list server at University of Cincinnati (1.8d)" <LISTSERV@LISTSERV.UC.EDU> To: your name@your place.com Subject: Re: Command confirmation request (6D514ED6) > ok Confirming: > SUBSCRIBE LAM-PATIENTS your name You have been added to the LAM-PATIENTS list.

5. You are now Subscribed.

DO NOT USE THIS EMAIL ADDRESS AGAIN UNLESS YOU ARE UNSUBSCRIBING.

TO USE THE LISTSERV

1. Open your email account. Use whatever program you would normally use for email.

2. Send a message to LAM-PATIENTS@listserv.uc.eduThe message may be anything you wish. You may use the subject line or any other function in the email you are sending.

It willl look like this:

3. A copy of the message will be sent to you and also sent to everyone else on the listserv. To send a message to an individual, replace the listserv email with the individual's email address in the To: part of your message. Please be careful when trying to reply to someone's message personally, as the listserv is what the message will reply to first.

TO UNSUBSCRIBE

1. Send a message to LISTSERV@LISTSERV.UC.EDU

2. The message should say SIGNOFF LAM-PATIENTS

It willl look like this:

If you need any further assistance please contact our IT department.

There is an archive of all past e-mail messages with a web archive interface, if you would like to read the messages posted to the listserv.

Learn more about the symptoms, cause and treatment of LAM.

Get ideas and advice on how you can support The LAM Foundation.

Read about the latest news and happenings in the LAM community.