News and Events
IMPORTANT NEWS
An Elkins Park woman battles back against a disease that simply takes your breath away.
Click here to read full article from the Jewish Exponet.
Treatment Trial for women with LAM is now open!
The MILES (Multicenter International Lymphangioleiomyomatosis Efficacy of Sirolimus) Treatment Trial is open for enrollment! Conducted through the Rare Lung Diseases Consortium - a network of Universities funded by the National Heart, Lung and Blood Institute (NHLBI) to perform cooperative trials. This trial will test the efficacy of an FDA-approved drug called sirolimus (rapamycin) in patients with lymphangioleiomyomatosis (LAM). Click here for details
More MILES Trial Sites Open for Enrollment!
The MILES Trial continues to enroll patients as additional sites open. If you or someone you know is interested in participating in the trial, please contact one of the sites listed here.
CNN - LAM patient Kathy Stangl interviewed
Kathy's interview aired throughout the day on both CNN and Headline News, showing multiple times during the day on both stations. The story will also go out to more than 600 affiliated stations around the country, so it may be picked up by regional stations. Click here for more info
Click here to read the story and see the video on CNN's website.
LAM Foundation Scientist Elizabeth Henske Receives Medtronic Prize
Dr. Elizabeth Henske was awarded the Medtronic Prize from the Society for Women's Health Research in Washington, D.C. The $75,000 Prize is awarded to an outstanding scientist or engineer who has received national recognition and whose work has led or will lead directly to the improvement of women's health. Click here for more info
LAM Foundation's Founder Honored by American Thoracic Society
Sue Byrnes, Founder of The LAM Foundation, recently received the American Thoracic Society Public Service Award at the American Thoracic Society 2007 International Conference for her outstanding contributions in the public health arena related to respiratory disease and medicine, and for her significant life-long contributions to the field. Click here for more info
LAM Foundation's Scientific Director Recognized for LAM Research
Dr. Frank McCormack, The LAM Foundation's Scientific Director, was honored by the Cincinnati Business Courier for his contributions to patient care, research, management and community service. Chosen from more than 300 nominees, Dr. McCormack was the recipient of the Innovator Award. Click here for more info
UPCOMING EVENTS
Sally Foster - Online Fundraiser until June 30, 2009!
If you like to shop AND donate to The LAM Foundation, please visit the Sally Foster website at http://www.sallyfoster.com/.
• Go shopping
• When/if you purchase anything, go to "Group/Account Number"
• Go to "School/Group Account Number and enter #865903*
• You will see "Eustis Friends of The LAM Foundation"
• Continue through checkout
Sally Foster offers excellent quality totes, gift wraps, chocolates, home décor and MORE!
50% of your purchase supports The LAM Foundation.
*You MUST enter the number 865903 in order for the Foundation to receive the proceeds.
You will pay shipping on all orders under $70 but shipping is FREE for any order over $70 so get all your friends and family to make one big purchase to help The LAM Foundation!
If you have any questions, please contact Amie Powers at apowers@thelamfoundation.org.
2009
February 7th - Celebration of Wine - Buffalo, NY
7:00 pm - 10:00 pm
Wine Tasting, Auction, Raffle, Hors d'oeuvres
Featuring Bobby Militello's Quartet
Asbury Hall at Babeville
341 Delaware Ave.
Buffalo, NY 14202
Questions: Please contact Loretta McKenna at wnylam@hotmail.com or 716-826-4692.
Learn more about the symptoms, cause and treatment of LAM.
Get ideas and advice on how you can support The LAM Foundation.
Read about the latest news and happenings in the LAM community.